The biggest piece of overall advice that was given to me was this: Pin needs MORE. More stimulation, more stability with her posture, more kinesthetic awareness, more arousal, more synergies of movement, more initiation of movement, more somatosensory input, etc. The medication that Pin was/is on has slowed her body down SO much she needs MORE than the average kid to get her going. She needs stronger tastes (they fed her pickle juice and she barely winced!), more swinging, bouncing, and rough-play, more noise and more of LIFE in general. Living life BIGGER seems overwhelming but I'm choosing to incorporate small things into our daily living. At the grocery store today, I bought whipped creme, chocolate pudding and a box of cherry jello for our "food play" time. If I make it fun, it won't seem like therapy. Right?
The best part of all of these delays, is that we think she can catch up. There is no reason for us to believe she can't. We have never been told "pin won't walk, pin won't talk, etc." The hardest part about a seizure disorder is getting the seizures under control and by the grace of God, that has happened. With lots of work, play, patience and most importantly, prayer we have every reason to think Pin can lead a normal, healthy life. Brenda, Pin's PT, kept saying "she is college material."
Until then, I will be playing hard and LOUD with Pin. If anyone wants to come play with us, let me know. We are the house with the strobe light and head banging music.