This is Jeremy. No sooner did Steph share about Pinny's lack of seizures in recent weeks did they unfortunately return. Despite my best efforts not to, it seems I have passed a cold on to her; Pinny has been stuffed up and having diarrhea today. When epileptic babies get sick, they are more susceptible to seizures. I think this is because their overall system gets agitated and they may not fully absorb medication.
At any rate, at about 6pm tonight Pinny began to have a cluster of 6 or so seizures in a 45 minute span. They were more minor than the ones we have been accustomed to, but we've been told that more than 3 in 30 minutes can necessitate us rectally administering a powerful drug called Diastat to Pinny. This drug is basically Valium; it can depress a baby's breathing-- as a result, it's recommended we call 9-1-1 if we have to use it. We opted not to do so tonight based on our gut that she is O.K. And since that cluster earlier in the evening, she has calmed down somewhat with maybe 1-2 short seizures per hour.
Please pray for us that Pinny's seizures would quickly subside and that she would quickly get over this cold. Please pray we wouldn't be discouraged by this episode and that we would continue to trust the Lord.
UPDATE (Friday am): Things seem to have stablized somewhat, although Pinny still has a cold. Thankfully she is eating and sleeping well. Please continue to pray this cold will pass quickly, and that we would continue to focus on what is unseen, not what is seen (II Cor. 4 17-18):
For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal.
