Today is the day. I was given the "ok" yesterday to start weaning Pin off topomax, a med she has been on since June 2010. We are beyond thrilled and I'm really nervous. We want her to remain stable as her meds decrease. Six pills, dropping one a week, over six weeks. This is the best Christmas gift we could ever receive.
Please pray she will continue to be seizure-free and that development will blossom after the removal of this med. Her neurologist calls it "dopomax," as it calms and slows EVERYTHING in her body. It effects balance (she is 19 months and still not independently sitting), taste, etc...
Thanks for caring for us. I will keep you posted.