October 14, 2010

grateful and humbled. day 18 & counting.....

Yesterday was a BUSY day and one full of good news:

The day started with Pin having a "swallow test" in the city. She sat in a 'car seat' while I fed her green- apple flavored barium while a moving x-ray watched her suck and swallow. The room was filled- 3 techs, a speech pathologist and a physician. Pin drank one ounce before they stopped me and said all was normal except a little acid reflux (she weighed in at 13lbs. 14 oz. She's getting chunkier and more luscious.)
We then went to Oak Park to visit her Chiropractor (basically a neurological therapist) whom we have visited three times a week for the past month and a half. He was so encouraged that our next appointment is in a week.
On our way home, Jeremy and I had a conference call with Dr. Wylie from the Cleveland Clinic. She was thinking about us and called to see how we were doing (AMAZING and so kind). We updated her from mid-June on and she said, "well- I think she is going to grow out of these."
I then received a call from our Genetic Counselor (I didn't even know this profession existed until 5 months ago) saying two more test results came back normal. One more is still pending and highly unlikely to be positive.

Today, Pinny's physical therapist came and was also very encouraged. This is what happened after 45 minutes into her session. Poor Pin is exhausted.

We are so blessed, grateful and humbled by all of this encouraging news.

To God be the glory for the great things He has done-


  1. Amen sister! How exciting! "...that you may declare the praises of him who called you out of darkness into his wonderful light." - 1 Peter 2:9 This verse came to mind thinking about the first weeks of Pin's precious life to now. Different context I know, but the words still fit exactly!