A quick update on yesterday's doctor's appointments:
-Pinny DOESN'T have NKH (glycine encephalopathy). Praise the Lord!!!!
-She is off 3 medications
-Her EEG has improved (still concerning but NO burst suppressions).
-She weighs 8 lbs. 1 oz.
-She has not had a seizure since Saturday
I will explain more later. For now, I just want to say:
The Lord is so worthy to be praised.