This week certainly has been intense....high highs and low lows. Right now as I type, Pinny is in a "pattern" of seizures and can't seem to get out of it. Tomorrow we drive to Cleveland and Tuesday's appointments can't come soon enough. We have two scheduled times with "the woman who writes the books on infants and seizures." We are hopeful for answers and praying for wisdom, direction and a TOTAL HEALING.
Even though this weekend has been hard, we are clinging to the "stones of remembrance" from Wednesday. We are praising the Lord for answering our prayers and trusting in His goodness.
The follow-up visit with the pediatric neurologist confirmed that Pinny can now be taken off three of her five medications. Her EEG (from that morning) looks better, too. The "burst suppressions" are gone but her patterns are still showing "abnormal."
There still is need for continued prayer as further testing will be done to determine the source of her seizures. We are headed to Cleveland Clinic tomorrow for a few days. We would love for you to go with us in prayer.
We love you all and could not be doing this journey without your love and support-