all praise, glory & honor.

First and foremost, our God is amazing. He is SO personal, loving, caring and good. We are in awe of His power & might. Through this whole trial, it has been our desire to sit firmly on THIS three-legged stool.

We found out today that Pinny DOES have infantile spasms. We, of course, are shocked, saddened and discouraged. But, we have peace. We feel your prayers, have been so encouraged by your texts and know that we are not walking this alone.

We made some treatment decisions today that we hope will be effective. We will likely know in the next two to three weeks whether the first drug we are trialing will work. We would love your prayers for the following:

-We would have 100% cessation of the spasms without this drug's main side effect (permanent visual field loss).
-That the Lord would cup His mighty hands of protection around her lil' brain.
-Advancement in Pin's development despite this major step back.

We can't thank you enough for being here for us. We have hope.
Love to you-
S.