A quick update on yesterday's doctor's appointments:
-Pinny DOESN'T have NKH (glycine encephalopathy). Praise the Lord!!!!
-She is off 3 medications
-Her EEG has improved (still concerning but NO burst suppressions).
-She weighs 8 lbs. 1 oz.
-She has not had a seizure since Saturday
I will explain more later. For now, I just want to say:
The Lord is so worthy to be praised.
AHHHHH!!! Tears! Yea!!
ReplyDeletePraise the Lord, indeed!! So happy to read this today. We'll continue praying for you guys!
ReplyDeleteHallelujah! He is worthy to be praised.
ReplyDeleteyay!!!!!!!!!!!!!!!!!!!!
ReplyDeleteso happy....
we'll keep praying for your not-quite-as-little pin!
Amen! God is VERY good!
ReplyDeleteYay!!! God is so good!! *HUGS*
ReplyDeleteYAAAAAAAAAAAAAAAAAAAAAAYYYYYYYYYY! :) yay for you guys and yay for our awesome God! :) so happy! (aunt carlye)
ReplyDeleteThank god every day for this blessing will continue to pray for resolution to whatever is causing these seizures
ReplyDeleteohmygoodness! Lord, You are good and Your mercies endure forever. Rejoicing!
ReplyDeleteGod is great! Thank you Lord!!!!!!!!
ReplyDeletePraise the Lord! He is good!
ReplyDeletePraise the Lord!!!!
ReplyDeletePraise to our God!! He is good and his loves endures forever!
ReplyDeleteI got chills when I read this. So fantastic. Praise the Lord!
ReplyDeleteBH
Oh Steph, that is GREAT news! Praise God! I will continue to pray that the doctors can determine the cause of the seizures so that they can treat them effectively. What a precious little girl ~ I'm lovin' the pics!
ReplyDeleteO Lord God, You have only begun to show Your servant Your greatness and Your mighty hand. For what god is there in heaven or on earth who can do such works and mighty acts as Yours?
ReplyDeletesuch great news... praying for you.
ReplyDeleteI am overjoyed and so very thankful! We serve an awesome and miraculous God!
ReplyDeleteI will continue to pray for no more seizures and total healing. Thank you so much for keeping us all updated! You are all constantly on my heart!
Praise Jesus!! Such great news to hear. Will continue to pray for little Pinny - she is so darling in all your pictures. You definitely have an eye Steph for capturing her sweet moments - must be that mother's heart at work. Jer - what a great example of the Father you are already living out before your daughter in all the ways you are seeking to protect and lead. Praying for each of you - thanks for sharing your life on this blog!
ReplyDeleteThis is such an amazing answer to prayer. Pinny looks like you, Steph. She is adorable.
ReplyDeleteThank God!!!! We will continue praying for answers and for healing :)
ReplyDelete